Amani’s Journey Fighting for Freedom From Sickle Cell Disease
Her Journey is Our Journey
Amani’s Journey All Rights Reserved 2013-2017 email:
What is Sickle Cell?
Life Expectancy Sickle cell disease is a life-long illness. The severity of the disease varies widely from person to person. In high-income countries like the United States, the life expectancy of a person with SCD is now about 40–60 years. Sickle Cell research, advances in diagnosis and care has made a dramatic impact int he lives of patients. Twenty-five years ago the average lifespan of a person with SCD in the United States was only 14 years. At the present time, hematopoietic stem cell transplantation (HSCT) is the only cure for SCD. Unfortunately, most people with SCD are either too old for a transplant or don’t have a relative who is a good enough genetic match for them to act as a donor. A well-matched donor is needed to have the best chance for a successful transplant. There are effective treatments that can reduce symptoms and prolong life. Early diagnosis and regular medical care to prevent complications also contribute to improved well-being. Who Is At Risk? In the United States, most people with sickle cell disease (SCD) are of African ancestry or identify themselves as black. About 1 in 13 African American babies is born with sickle cell trait. About 1 in every 365 black children is born with sickle cell disease. There are also many people with this disease who come from Hispanic, southern European, Middle Eastern, or Asian Indian backgrounds. Approximately 100,000 Americans have SCD.